Jayden’s Hidden Treasures is committed to researching and locating resources that will support you in your caring journey. Click on the category that best describes your area of need to view the resources in that category. Some resources fit into multiple categories, so will be included in all that they cover.

We will be adding new resources each month, so check back often!

 

Disease/Illness Information

When your child receives a medical diagnosis, it can be frightening and overwhelming. This section contains helpful information on common diseases and conditions, and we will update it regularly as families tell us what information would be helpful to them.

National Organization for Rare Diseases

Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, fin […]

Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. With our network of members, advocates, and partners, we make critical connections and work to make an impact for every person with a rare disease.

Babies Can’t Wait

Babies Can’t Wait is Georgia’s statewide interagency service delivery system for infant […]

Babies Can't Wait is Georgia's statewide interagency service delivery system for infants and toddlers with developmental delays or disabilities and their families. Babies Can't Wait is established by Part C of the Individuals with Disabilities Education Act (IDEA) which guarantees all eligible children, regardless of their disability, access to services that will enhance their development.

Child Neurology Foundation

Child Neurology Foundation is committed to helping children and their families living with a neurol […]

Child Neurology Foundation is committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.

Leukemia in Children

This section of the American Cancer Society’s website contains informational and educational […]

This section of the American Cancer Society's website contains informational and educational resources including disease and treatment information, programs and services, current research and family and caregiver supports.

Autism Speaks

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life […]

Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. 

Treatment Options for Pompe Disease

While ERT is the only type of treatment approved to date for Pompe, supportive therapies can help m […]

While ERT is the only type of treatment approved to date for Pompe, supportive therapies can help maximize ability to function.

Autism Treatment Center of America

The Son-Rise Program is a powerful and effective treatment for children and adults challenged by Au […]

The Son-Rise Program is a powerful and effective treatment for children and adults challenged by Autism, Autism Spectrum Disorders, Pervasive Developmental Disorder (PDD), Asperger’s Syndrome, and other developmental difficulties.

Financial

Financial challenges are common for families with an ill or disabled child. Resources found in this section will help address needs you may be facing, either now or in the future.

New Option and Comprehensive Support Waiver Programs

NOW and COMP are for eligible people with intellectual and/or developmental disabilities who requir […]

NOW and COMP are for eligible people with intellectual and/or developmental disabilities who require an intermediate care facility. NOW offers services and support to enable individuals to remain living on their own or in their family home and participate in the community. COMP serves individuals with more intensive needs, primarily those with intellectual and/or developmental disabilities who require residential care.

SOURCE Medicaid Waiver

To qualify for this Medicaid waiver, you must be eligible for Medicaid and 65 of older (or if young […]

To qualify for this Medicaid waiver, you must be eligible for Medicaid and 65 of older (or if younger than 65, meet certain disability requirements) and require nursing home level care.

Georgia STABLE

Georgia STABLE provides access to STABLE accounts for Georgians with disabilities, tax-free savings […]

Georgia STABLE provides access to STABLE accounts for Georgians with disabilities, tax-free savings for disability-related expenses, and the ability to save and invest without losing needs- based benefits.

Rare Patient Voice

The Vision of Rare Patient Voice is to include the patient voice in research and ultimately improve […]

The Vision of Rare Patient Voice is to include the patient voice in research and ultimately improve the lives of patients everywhere. Rare Patient Voice empowers patients and caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives while earning cash rewards.

National Organization for Rare Diseases

Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, fin […]

Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. With our network of members, advocates, and partners, we make critical connections and work to make an impact for every person with a rare disease.

Georgia Department of Community Health

The Georgia Department of Community Health serves as the lead agency for Georgia Medicaid and Peach […]

The Georgia Department of Community Health serves as the lead agency for Georgia Medicaid and PeachCare for Kids®, and oversees the Healthcare Facility Regulation Division, State Health Benefit Plan, and State Office of Rural Health, among other divisions.

Georgia Advocacy Office

GAO’s mission is to organize our resources and follow our values and legal mandates in ways w […]

GAO's mission is to organize our resources and follow our values and legal mandates in ways which substantially increase the number of people who are voluntarily standing beside and for people in Georgia who have significant disabilities and mental illness. We envision a Georgia where all people have value, visibility and voice.

Make-A-Wish America

A wish experience can be a game-changer for a child with a critical illness. This one belief guides […]

A wish experience can be a game-changer for a child with a critical illness. This one belief guides us in everything we do at Make-A-Wish. It inspires us to grant life-changing wishes for children going through so much.

Easter Seals of Southern Georgia

Easterseals Southern Georgia strives to offer the best services and programs available to assist ch […]

Easterseals Southern Georgia strives to offer the best services and programs available to assist children and adults with disabilities and special needs achieve independence in their lives and their communities. Services range from Respite and Family Support to Residential and Vocational.

Find Help Georgia

Their online resource portal will help you locate financial assistance, food pantries, medical care […]

Their online resource portal will help you locate financial assistance, food pantries, medical care, childcare, and other free and reduced-cost services specific to your area.

Caregiver Support

Caregivers often neglect their own needs while caring for others, which can result in burnout. These resources will help you find effective ways to deal with stress and maintain your own quality of life.

Focused Coaching and Consulting, LLC

F.O.C.U.S.E.D. (Focused on Outcomes Created to Utilize Strengths and Encourage Development) offers […]

F.O.C.U.S.E.D. (Focused on Outcomes Created to Utilize Strengths and Encourage Development) offers personalized coaching services for grief & loss, anger management, co-parenting, and cultivating a more positive mindset.

Parent to Parent USA

Our mission is to support a national network of Parent to Parent programs to ensure acces […]

Our mission is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.

Babies Can’t Wait

Babies Can’t Wait is Georgia’s statewide interagency service delivery system for infant […]

Babies Can't Wait is Georgia's statewide interagency service delivery system for infants and toddlers with developmental delays or disabilities and their families. Babies Can't Wait is established by Part C of the Individuals with Disabilities Education Act (IDEA) which guarantees all eligible children, regardless of their disability, access to services that will enhance their development.

Easter Seals of Southern Georgia

Easterseals Southern Georgia strives to offer the best services and programs available to assist ch […]

Easterseals Southern Georgia strives to offer the best services and programs available to assist children and adults with disabilities and special needs achieve independence in their lives and their communities. Services range from Respite and Family Support to Residential and Vocational.

Child Neurology Foundation

Child Neurology Foundation is committed to helping children and their families living with a neurol […]

Child Neurology Foundation is committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.

River Valley Area Agency on Aging

The River Valley Area Agency on Aging and Disability Resource Connection is a valuable resource for […]

The River Valley Area Agency on Aging and Disability Resource Connection is a valuable resource for seniors, people with disabilities, family members, caregivers, and professionals. The search function of their empowerline resource directory will guide you towards categories of assistance such as financial assistance/benefits, caregiver support, and transportation.

teacher support

Educational Support

Educational support is critical for your child’s success, but finding the information you need as a parent to support your child’s learning can be difficult. Browse this section for tips and advice that may help you in your advocacy for your child.

Focused Coaching and Consulting, LLC

F.O.C.U.S.E.D. (Focused on Outcomes Created to Utilize Strengths and Encourage Development) offers […]

F.O.C.U.S.E.D. (Focused on Outcomes Created to Utilize Strengths and Encourage Development) offers personalized coaching services for grief & loss, anger management, co-parenting, and cultivating a more positive mindset.

Rare Patient Voice

The Vision of Rare Patient Voice is to include the patient voice in research and ultimately improve […]

The Vision of Rare Patient Voice is to include the patient voice in research and ultimately improve the lives of patients everywhere. Rare Patient Voice empowers patients and caregivers to share their voices with researchers and companies developing products, devices, and treatments to improve lives while earning cash rewards.

Parent to Parent USA

Our mission is to support a national network of Parent to Parent programs to ensure acces […]

Our mission is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.

National Organization for Rare Diseases

Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, fin […]

Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. With our network of members, advocates, and partners, we make critical connections and work to make an impact for every person with a rare disease.

Georgia Advocacy Office

GAO’s mission is to organize our resources and follow our values and legal mandates in ways w […]

GAO's mission is to organize our resources and follow our values and legal mandates in ways which substantially increase the number of people who are voluntarily standing beside and for people in Georgia who have significant disabilities and mental illness. We envision a Georgia where all people have value, visibility and voice.

Babies Can’t Wait

Babies Can’t Wait is Georgia’s statewide interagency service delivery system for infant […]

Babies Can't Wait is Georgia's statewide interagency service delivery system for infants and toddlers with developmental delays or disabilities and their families. Babies Can't Wait is established by Part C of the Individuals with Disabilities Education Act (IDEA) which guarantees all eligible children, regardless of their disability, access to services that will enhance their development.

Child Neurology Foundation

Child Neurology Foundation is committed to helping children and their families living with a neurol […]

Child Neurology Foundation is committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most.

Ferst Readers

Children in the Ferst Readers literacy program receive a free bookstore-quality, age-specific book, […]

Children in the Ferst Readers literacy program receive a free bookstore-quality, age-specific book, and resources mailed to them at home every month from birth until their fifth birthday. Enroll your children today!

Georgia Department of Education IEP Fact Sheet

This fact sheet on the Individualized Education Program of the State of Georgia contains important […]

This fact sheet on the Individualized Education Program of the State of Georgia contains important information and advice for parents of special needs children.

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Support

Support for families caring for a child who is ill or disabled comes in many forms. Learn how we can assist you with your challenges.

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Resources

We want to provide families with an array of resources that can help them navigate the caregiving journey successfully.

Need to talk?

Do you have questions for members of our staff? Are their particular resources that you need, but have been unable to find? Let us help.